Gravesend: Families affected by cystic fibrosis hold fundraisers

10:15 20 June 2012

Macey and Vinnie, both have cystic fibrosis

Macey and Vinnie, both have cystic fibrosis


Families affected by life-threatening condition cystic fibrosis are hosting two charity events to raise money for their cause.

Two weeks ago Mandy Martin, 30, and Thomas Packer, 27, of Newmans Road, Gravesend, welcomed their second child, a boy called Vinnie, into the world.

Their eldest child, two-year-old Macey, has cystic fibrosis and when Vinnie underwent tests the family discovered that he too had inherited the condition.

Mandy and the children’s aunt Melanie Wood, 33, of The Crescent, set up the charity the Macey Rose Cystic Fibrosis Trust last year which will now be edited to include Vinnie’s name.

Melanie said: “Vinnie’s mum and dad are dealing really well with the news. Macey is doing well but they do have their ups and downs.”

CF is a genetic condition in which the lungs and digestive system become clogged with thick sticky mucus.

On July 27 they are holding a disco at 7.30pm at Perry Street Conservative Club with tickets costing £7.50 for adults and children go free. Proceeds go to the Cystic Fibrosis Trust to fund research helping children and adults with the condition.

A charity rock gig is being held this Saturday (23) in New Ash Green Pavilion to support the Cystic Fibrosis Trust with four local bands starting at 6.30pm with £5 entrance.

Organiser Lorraine Cooper, 35, of Manor Forstal, New Ash Green, has lost three cousins to the condition.

Her aunt and uncle, from Walthamstow, were both carriers and all three of their children had the disease and died - the first-born while still a baby, the youngest at age 15 and the middle child lived to 30.

She said: “I carry the gene myself so before I had children I had to check my husband was not a carrier. Having young children of my own now I want to help anyone whose children suffer from the disease.”

Anyone interested in attending either event can buy tickets on the night.


Latest News

Fri, 14:38

The shop will be open from 10am to 4pm Monday to Friday next week in St George’s Centre

Thu, 17:22
Dean Tarrant

The offences were committed when the offender lived in Swanley and Dartford

Thu, 12:57
Chancellor of the Exchequer George Osborne leaves the Treasury in London for the House of Commons, where he will deliver his joint Autumn Statement and Spending Review

9,900 jobs could be created after the North Kent Innovation Zone was granted Enterprise Zone status

Thu, 09:38
Laurence Tricker and Raz Razak

Cyclists will have the chance to sit in a lorry so they can see potential dangers.

Thu, 08:41
Ann Barnes, Kent PCC

Police and crime commissioner was at a policing conference in Manchester when she heard the news

Wed, 16:30
Gareth Johnson.

Mr Johnson appealed to the chancellor earlier in the month requesting increased funding

Most read


MAC Makeup

MAC are renowned for their flawless, fabulous make up that is used worldwide by the stars. You too can have the chance to have the perfect makeup to suit your needs with £1,000 to spend on all the glam goodies you like!


You are never far from an Argos, wherever in the country you may be. They are like a magical cavern where whatever you need they seem to have it out the back behind the counter. So why not put them to the test with this great MyOffers competition to win £1000 to spend in-store.

Digital Edition

Read the Gravesend Reporter e-edition today E-edition

Family Notices 24

Local business directory

Our trusted business finder