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Gravesend: Families affected by cystic fibrosis hold fundraisers

10:15 20 June 2012

Macey and Vinnie, both have cystic fibrosis

Macey and Vinnie, both have cystic fibrosis

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Families affected by life-threatening condition cystic fibrosis are hosting two charity events to raise money for their cause.

Two weeks ago Mandy Martin, 30, and Thomas Packer, 27, of Newmans Road, Gravesend, welcomed their second child, a boy called Vinnie, into the world.

Their eldest child, two-year-old Macey, has cystic fibrosis and when Vinnie underwent tests the family discovered that he too had inherited the condition.

Mandy and the children’s aunt Melanie Wood, 33, of The Crescent, set up the charity the Macey Rose Cystic Fibrosis Trust last year which will now be edited to include Vinnie’s name.

Melanie said: “Vinnie’s mum and dad are dealing really well with the news. Macey is doing well but they do have their ups and downs.”

CF is a genetic condition in which the lungs and digestive system become clogged with thick sticky mucus.

On July 27 they are holding a disco at 7.30pm at Perry Street Conservative Club with tickets costing £7.50 for adults and children go free. Proceeds go to the Cystic Fibrosis Trust to fund research helping children and adults with the condition.

A charity rock gig is being held this Saturday (23) in New Ash Green Pavilion to support the Cystic Fibrosis Trust with four local bands starting at 6.30pm with £5 entrance.

Organiser Lorraine Cooper, 35, of Manor Forstal, New Ash Green, has lost three cousins to the condition.

Her aunt and uncle, from Walthamstow, were both carriers and all three of their children had the disease and died - the first-born while still a baby, the youngest at age 15 and the middle child lived to 30.

She said: “I carry the gene myself so before I had children I had to check my husband was not a carrier. Having young children of my own now I want to help anyone whose children suffer from the disease.”

Anyone interested in attending either event can buy tickets on the night.

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